Sickle cell disease is considered a rare disease in Australia. To date, there has never been a conference about SCD in Australia. We have reached out to some of the leading experts in SCD to highlight this disease in Australia. An article by Stephen Boateng indicates that “The World Health Organization (WHO), estimates over 300,000 babies born each year with severe hemoglobin disorders. Approximately 70,000-100,000 individuals in the United States have SCD and three million have sickle cell trait”. In Australia we have many people affected as well, unfortunately we do not have the data surveillance available. This is the more reason why we need to continuously discuss SCD in Australia, to improve services for people affected as well as find better curative options accessible for all.