BREAKING THE BARRIERS
A NEW HORIZON

AUSTRALIA'S FIRST-EVER SICKLE CELL DISEASE CONFERENCE

SAVE THE DAY !!! 17th and 18th Sept 2021

A VIRTUAL CONFERENCE

MEET OUR SPEAKERS​

Sickle cell disease (SCD) is considered a rare disease in Australia. To date, there has never been a conference about SCD in Australia. An article by Stephen Boateng indicates that “The World Health Organization (WHO), estimates over 300,000 babies born each year with severe hemoglobin disorders. Approximately 70,000-100,000 individuals in the United States have SCD and three million have sickle cell trait”. In Australia we have many people affected as well, unfortunately we do not have the data surveillance available. This is the more reason why we need to continuously discuss SCD in Australia, to improve services for people affected as well as find better curative options accessible for all. Meet our speakers for this conference who will contribute to these discussions.  

Agnes Nsofwa

Agnes Nsofwa

Founder & Executive Director Australian Sickle Cell Advocacy Inc (ASCA) Founder Amplify Sickle Cell Voices International

Dr Marguerite Evans-Galea AM

Dr Marguerite Evans-Galea AM

Executive Director – Industry Mentoring Network STEM – Chairperson Australian Sickle Cell Advocacy Inc (ASCA)

Hon Mark Butler MP

Hon Mark Butler MP

Shadow Minister for Health and Ageing Federal Member for Hindmarsh

Hon Greg Hunt MP

Hon Greg Hunt MP

Health Minister for Health and Aged Care – Federal Member for Flinders

Hon Maria Vamvakinou

Hon Maria Vamvakinou

Federal Member for Calwell Victoria. Official ASCA Ambassador

Dr Anthea Greenway

Dr Anthea Greenway

Paediatric Haematologist Director of Clinical Haematology Royal Children’s Hospital

Prof Erica Wood

Prof Erica Wood

Transfusion Research Unit in the School of Public Health and Preventive Medicine at Monash University

Jo Watson

Jo Watson

Deputy Chairperson Pharmaceutical Benefits Advisory Committee (PBAC)

Professor Baba Inusa

Prof Baba Inusa

Sickle Cell and Thalassaemia, Paediatric Haematology, Evelina London Children’s Hospital

Dr Kongolo Kalumba

Dr Kongolo Kalumba

Consultant Paediatrician and Clinical Haematologist. ASCA Board Member

Prof Phoebe Joy Ho AM

Prof Phoebe Joy Ho AM

Clinical Professor – Medicine, Central Clinical School Haematology Director of Research Royal Prince Alfred Hospital

Prof Wally Smith

Prof Wally Smith

Professor of Medicine – Virginia Commonwealth University

Dr Giselle Kidson-Gerber

Consultant Haematologist | NSW Health

Prof Catherine Cole

Transfusion Medicine Specialist-Australian Red Cross Lifeblood

Professor Merlin Crossley

Prof Merlin Crossley

Deputy Vice-Chancellor (Academic) UNSW & Professor of Molecular Biology, Sydney Australia

Dr David Hughes

Dr David Hughes

Consultant Paediatric Haematologist Royal Children’s Hospital Melbourne

Claire Dowsing

Claire Dowsing

Haematology and BMT Donor Clinical Nurse Consultant at Royal Melbourne Hospital

Professor Lewis Hsu

Prof Lewis Hsu

Director Sickle Cell Program, Professor of Pediatrics of University of Illinois Chicago

Anna Duncan

Anna Duncan

Sickle Cell Clinical Nurse Consultant – Royal Children’s Hospital

Heather Renton

Heather Renton

Chief Executive Officer – Syndromes Without A Name (SWAN) Australia

Charles W Stark Pharm D

Dr Charles W. Stark

Senior VP of Clinical Development and Medical Affairs Emmaus Medical, Inc.

Monica Ferrie

Monica Ferrie

Chief Executive Officer - Genetic Support Network of Victoria

Ms Elizabeth de Somer

Ms Elizabethe de Somer

CEO Medicines Australia

Professor Andrew Perkins

Prof Andrew Perkins

MBBS FRACP FRCPA – Consultant Haematologist

Dr Kylie Mason

Dr Kylie Mason

Haematologist and Clinician Researcher at Royal Melbourne Hospital and University of Melbourne

Dr Pasquale Barbaro

Dr Pasquale Barbaro

Paediatric Haematologist

Catherine Halliday

Catherine Halliday

Chief Executive Officer Centre for Disease and Community driven Research

Dr Catherine (Kariuki) Nyuthe

Dr Catherine (Kariuki) Nyuthe

Director of Advanced Training at Royal Australian and New Zealand College of Psychiatrists (RANZCP)

Nicole Millis

Nicole Millis

Chief Executive Officer – Rare Voices Australia

Professor Isaac Odame

Prof Isaac Odame

University of Toronto Haematology Section Head

Dr Andrew Campbell

Dr Andrew Campbell

Director, Comprehensive Sickle Cell Disease Program, Children’s National Hospital

Dr Stephen Boateng

Dr Stephen Boateng

Rutgers Post-Doctoral Fellow|Co-Host of The Sickle Cell Podcast, USA

Dr Lydia Pecker

Dr Lydia Pecker

Assistant Professor of Medicine Director, Young Adult Clinic, Johns Hopkins Sickle Cell Center for Adults

Dr Catherine Sampa Muyeba

Regional Lead Consultant Psychiatrist; Founder of REAPing Women

Dr Annette Akinsete

Dr Annette Akinsete

National Director/CEO at Sickle Cell Foundation Nigeria

Dr Catherine Chunda

Consultant Paediatrician at University Teaching Hospitals, Lusaka Zambia

Sylvia B Mwansa

Sylvia B Mwansa

CEO/Change Agent at SBM Investments Ltd/Consulting and Coaching Services

Dr Adis del Carmen Perez Cogle

Toyin Adesola

Founding Executive Director at Sickle Cell Advocacy & Mgt Initiative

Eunice Coelho

Eunice Coelho

Organizational Psychologist and Behavioral Profile analyst and Organizational DNA

Kyle Young

Dr Titilope Fasipe

Tiwonge Kumwenda

Gragevis Bakatukanda

Ade Adeseye

Ade Adeseye

Yemi Moses

Yemi Moses

Dr Dexter Patel

Dr Dexter Patel

Chairperson Sickle Cell Awareness Foundation

Yara Miranda

Yara Miranda

Eunice Owino

Eunice Owino

Adult Living with Sickle Cell Disease - Kenya

Mrs Mwewa Chisenga

Mrs Mwewa Chisenga

Accountant – Parent of two beautiful girls living with SCD, Adelaide Australia

Isabella Agius

Isabella Agius

Parent of two adults living with SCD, Brisbane Australia

Mukesh Verma

Mukesh Verma

Adult Living with Sickle Cell Disease - India

Nathalie Kapuya

Nathalie Kapuya

Khumbo Mpikamezo

Khumbo Mpikamezo

Caroline Mpikamezo

Caroline Mpikamezo

Zakareya Alkhadem

Zakareya Alkhadem

Chairperson Bahrain Sickle Cell Society-Bahrain

Nene Mpundu

Nene Mpundu

Mayase Jere

Mayase Jere

Shanta Robertson

Shanta Robertson

Shane Rao

Shane Rao

Teonna Woolford

Teonna Woolford

Chief Executive Officer at Sickle Cell Reproductive Health Education Directive

Dr Marjorie Dejoie-Brewer

Dr Marjorie Dejoie-Brewer

Medical Director at Sickle Cell Association of Delaware

Ginger Davis

Ginger Davis

Managing Partner UNTOLD Story LLC

Taila Carrilho

Taila Carrilho

Adult Living with Sickle Cell Disease

Sarah Kumwenda

Sarah Kumwenda

Adult Living with Sickle Cell Disease

Megan Brodie

Megan Brodie

Publishing Editor at MedNews Australia

Yvonne M Carroll, RN, JD

Yvonne M Carroll, RN, JD

Director, Patient Services Department of Hematology St. Jude Children’s Research Hospital

Molyn Chima

Molyn Chima

Adult Living with Sickle Cell Disease

Sharif Tusuubira

Sharif
Tusuubira

Adult Living with Sickle Cell Disease

Joanne Chazima

Joanne Chazima

Founder at Joanne Chazima Sickle Cell Foundation

Phoebe

Phoebe Ang

ASCA Social Media Personnel

Chelsea Truong

ASCA Vic Vice Secretary

Birendra Sahu

Birendra Sahu

(Vice President) NASCO, INDIA 

Edith Mpikamezo

Edith Mpikamezo

ASCA WA Team Member

Annastacia Wainaina

Annastacia Wainaina

ASCA NSW President

Sophia Anna

Sophia Anna

ASCA SA Team Member

Lucia Helena Ferreira Ancillotti

Felix Pinto

Dr Antonio Amardo

Dr Antonio Amardo

Zachary Agius

Zachary Agius

Dr Adrienne Lerner

Dr Adrienne Lerner

Giovanna Phillips

Giovanna Phillips

Yoga Instructor Giovanna Phillips Yoga

Erick Tankama Mabeya

Erick Tankama Mabeya

Corinne LIEGEOIS

Corinne LIEGEOIS

Alexis Chantal

Alexis Chantal

Dr Thuraya Alhosni

Dr Thuraya Alhosni

Chairperson of Oman Hereditary Blood Disorder Association

Dr Mohammad ALSHAHRANI

Dr Mohammad ALSHAHRANI

President of Saudi Society of Thalassemia and Sickle Cell Anemia

MR. BELAMDINI MOSTAFA

MR. BELAMDINI MOSTAFA

الاسم ASSOCIATION MOROCCAN FOR ANEMIA HEREDITARY بالفرنسية Association marocain d'anemie héréditaire

Dr Lakiea Bailey

Chief Executive Officer at Sickle Cell Consortium