18th SEPT 2021


Sickle cell disease is considered a rare disease in Australia. To date, there has never been a conference about SCD in Australia. We have reached out to some of the leading experts in SCD to highlight this disease in Australia. An article by Stephen Boateng indicates that “The World Health Organization (WHO), estimates over 300,000 babies born each year with severe hemoglobin disorders. Approximately 70,000-100,000 individuals in the United States have SCD and three million have sickle cell trait”. In Australia we have many people affected as well, unfortunately we do not have the data surveillance available. This is the more reason why we need to continuously discuss SCD in Australia, to improve services for people affected as well as find better curative options accessible for all. 

Contact us today to be one of the speakers on 17th and  18th September 2021.

Agnes Nsofwa RN, MsN, BBA – Founder & Executive Director – Australian Sickle Cell Advocacy Inc (ASCA) – Advisor – ASA

Professor Baba Inusa – Sickle Cell and Thalassaemia, Paediatric Haematology, Evelina London Children’s Hospital. Founder Annual Scientific Conference on Sickle Cell and Thalassaemia ( ASCAT)

Professor Yutaka Niihara – Chairman and CEO, Emmaus Life Sciences, Inc. Clinical Professor of Medicine at UCLA

Professor Isaac Odame -University of Toronto Haematology Section Head. Center for Global Child Health, Medical Director.

Professor Merlin Crossley – Deputy Vice-Chancellor (Academic) UNSW & Professor of Molecular Biology, Sydney Australia

Professor Lewis Hsu – Director Sickle Cell Program, Professor of Pediatrics of University of Illinois Chicago 

Stephen Boateng PharmD,RPh – Rutgers Post-Doctoral Fellow|Co-Host of The Sickle Cell Podcast, USA.

Yemi Moses – Senior Clinical Research Associate, International Clinical Research Organization, Adult living with SCD, USA.

Mr Peter Leos – Secondary School Teacher- Living with SCD, Melbourne Australia.

Mrs Mwewa Chisenga MBA CA – Accountant – Parent of two beautiful girls living with SCD, Adelaide Australia

Monica Ferrie – Chief Executive Officer –
Genetic Support Network of Victoria

Professor Andrew Perkins – MBBS FRACP FRCPA – Consultant Haematologist

Dr Anthea Greenway – Paediatric Haematologist – Paediatric Haematologist

Anna Duncan – Sickle Cell Clinical Nurse Consultant – Royal Children’s Hospital


Dr Kylie Mason – Haematologist and Disease Group Lead: Late Effects and Survivorship

Dr Pasquale Barbaro MBBS, FRCPA, FRACP
Paediatric Haematologist

Nicole Millis – Chief Executive Officer – Rare Voices Australia

Professor Phoebe Joy Ho – Clinical Professor – Medicine, Central Clinical School

Heather Renton – Chief Executive Officer – Syndromes Without A Name (SWAN) Australia

Arafa Salim Said – Founder Sickle Cell Disease Patients Community of Tanzania